Cystinosis Research Foundation - Irvine, California

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Cystinosis Research Foundation

The Cystinosis Research Foundation (CRF) is a renowned non-profit organization dedicated to funding cutting-edge research aimed at finding a cure for cystinosis, a rare genetic disorder that affects children and young adults. Established in 2001, the foundation has been at the forefront of cystinosis research, partnering with top medical institutions and researchers worldwide to accelerate progress towards a cure.

With its headquarters located at 19200 Von Karman Ave #920, Irvine, CA 92612, United States, the CRF is easily accessible for those seeking information or support related to cystinosis. The foundation can be reached by phone at 9492237610 or through their official website at cystinosisresearch.org.

One of the key strengths of the Cystinosis Research Foundation is its dedication to patient-centric research. By working closely with the cystinosis community, including patients and their families, the foundation ensures that its research priorities align with the needs and concerns of those directly affected by the disorder. This approach has led to significant advancements in understanding the disease and developing potential treatment options.

In addition to its research efforts, the CRF also provides valuable resources and support for the cystinosis community. The foundation offers educational materials, connects patients with clinical trials, and organizes events to raise awareness about cystinosis. With a strong focus on community engagement, the CRF strives to create a supportive network for those living with cystinosis.

The Cystinosis Research Foundation is committed to maintaining an inclusive and accessible environment for all visitors. The facility is equipped with wheelchair-accessible parking and entrance, ensuring that individuals with mobility challenges can easily access the foundation's services and resources.

Although the Cystinosis Research Foundation has not yet received any reviews on Google My Business, the foundation's track record of success and dedication to its mission speak volumes about its commitment to finding a cure for cystinosis. As the foundation continues its work, it is likely that more individuals will recognize the vital role CRF plays in improving the lives of those affected by this rare disorder.

Key Features and Information

• Non-profit organization dedicated to funding cystinosis research
• Headquarters located in Irvine, California
• Official website: cystinosisresearch.org
• Phone: 9492237610
• Specializes in patient-centric research and providing support to the cystinosis community
• Accessible facility with wheelchair-friendly parking and entrance

",
"summary": "The Cystinosis Research Foundation is a non-profit organization dedicated to funding research and providing support for individuals affected by cystinosis.",
"keywords": ["cystinosis research foundation", "cystinosis research", "non-profit organization", "cystinosis support", "rare disease research"],
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"language_used": "en"
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